The Preference Laboratory works to engage, empower, and enable people through Measures, Interventions, and Preferences.
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Evaluation von Option Grids zur Unterstützung der Partizipativen Entscheidungsfindung in der Brustkrebsbehandlung [Evaluation of Option Grids to support shared decision making in breast cancer treatment]
The purpose of the project is to investigate the feasibility and scalability of a new measure of patient engagement, called CollaboRATE, in an initial test-‐bed clinical setting (i.e., Dartmouth-‐Hitchcock Heater Road primary care facility) and in other clinical settings subsequently. The four main aims are to: (1) assess the feasibility of implementing CollaboRATE into existing clinical workflows using different delivery modes, including the response rate and respondent profile associated with different delivery modes, (2) assess the psychometric characteristics of CollaboRATE in a clinical setting, (3) develop a scalable system that enables the automated analysis of CollaboRATE data and allows tailored report generation, that can provide acceptable performance measurement to providers and clinics on the extent to which they engage patients in the delivery of care, and (4) assess the feasibility of implementing CollaboRATE into a range of clinical settings.
Glyn Elwyn, Marie-Anne Durand
Aim 1: The team will evaluate the impact and fidelity of a multicomponent SDM implementation strategy for the care of women who seek treatment for uterine fibroids, at five diverse gynecology settings and across socioeconomic strata.
Aim 2: The researchers will examine, using the Consolidated Framework for Implementation Research and the Normalization Process Theory, which contextual characteristics determine the success of sustaining a multicomponent SDM strategy.
Family Planning Ahead aims to help people to make decisions about birth control after having a baby.
Glyn Elwyn, Rachel Forcino, and William Nelson
To determine the extent to which patient-centered organizational statements (e.g. mission, vision, values) are reflected in the operations of health care provider organizations
Stuart Grande and Megan Coylewright
To inform a digital platform linking routine screening to an in-clinic Option Grid decision aid (iOGDA) for MDD (Major Depressive Disorder) in primary care
Paul Barr, Glyn Elwyn
To have routine audio recording of conversations with clinicians and patients in an effort to increase engagement of patients and families in their health care.
Marie-Anne Durand, Glyn Elwyn
To investigate whether the Picture Option Grid can reduce communication and decision making disparities between women of higher and lower SES, and to show that women who are able to use decision aids during the course of their care are more meaningfully involved (with their physicians) in creating a treatment plan for themselves, have lower anxiety, less decision regret, and a higher quality of life than women who receive the usual care (that typically doesn’t integrate decision aids)
Project advisory committee:
David Shern (National Association of State Mental Health Program Directors), Robert E. Drake (Dartmouth College), Lisa Dixon (Columbia University), Julie Kreyenbuhl (University of Maryland), Anthony Lehman (University of Maryland), Patricia Deegan (Dartmouth College), William Torrey (Dartmouth College), Manish Mishra (Dartmouth College), and Glyn Elwyn (Dartmouth College)
User testing of a new SDM tool designed to stimulate more collaborative decision making in psychiatric settings regarding using, adjusting, or stopping antipsychotic medications among people who have experienced one or more psychotic episodes and are now stabilized.
Rachel Thompson and Glyn Elwyn
1) To evaluate the effectiveness of two interventions designed to increase shared decision-making about contraceptive methods within the clinic visit; and 2) To evaluate the impact of the interventions on downstream outcomes (patient satisfaction with the method, adherence, and unintended pregnancy), as well as their acceptability and feasibility.
To develop a measure of organizational readiness for patient engagement, designed to monitor and facilitate a healthcare organization’s willingness and ability to effectively implement patient engagement in healthcare.
1) To determine the content, quality, and effectiveness of decision aids intended to support women’s quality decision-making between surgical and medical abortion in early pregnancy; 2) To identify women’s preferences, priorities, and decision support needs when deciding between surgical and medical abortion, and abortion care providers’ priorities for providing such support to women; 3) To understand women’s experiences choosing between and having a surgical or medical abortion in early pregnancy using patient narratives; 4) To evaluate the effectiveness, acceptability, and feasibility of a decision aid to support women’s informed, values-concordant decision-making about surgical versus medical abortion in early pregnancy.
Shama Alam, Stuart W Grande, Marie-Anne Durand
To understand the information and decision support needs of women diagnosed with early-stage breast cancer and to adapt existing decision tools to their needs.
Glyn Elwyn, Marie-Anne Durand, Stuart W Grande
To learn more about the factors that add or impede the adoption of short, decision support tools called Option Grids in established clinical practice.
To develop a pictorial encounter tool designed to promote shared decision making, derived from Option Grids
Collecting women’s preferences when deciding about treatment for pelvic organ prolapse in order to develop an Option Grid.
Annemijn Aarts and Tina Foster
To evaluate the effectiveness of the Option Grid in eliciting treatment preferences in this specific gynecologic population and setting.
Examine underlying motivations and frequencies of patients who recorded, considered recording, or would never record their clinical encounters.
To implement and test a novel means of integrating shared decision making into interprofessional education.
a) To translate and adapt two Option Grids on breast cancer treatments, i.e., one on breast cancer surgery and one on breast reconstruction, b) To evaluate the patient and physician acceptance of the Option Grids as well as their feasibility in German routine care, and c) To assess needs for additional Option Grids for other treatment decisions in Germany.
Dr. Marcus Coe
To assess the feasibility of using a novel point of view video camera (Google Glass) to improve the surgical skills education of orthopaedic surgery residents.
To develop a patient decision aid for people with hearing loss
To evaluate the impact of using Option Grids and CollaboRATE on patient engagement in medical decision making in routine clinical settings in Poland.
Marie-Anne Durand (PI: Bob Gates)
To conduct a randomized controlled feasibility trial exploring key methodological, design and acceptability issues, in order to subsequently understand a large-scale randomized controlled trial of the Book Beyond Words booklet for Epilepsy as an intervention for epilepsy in patients with intellectual disabilities.
To examine the patient engagement activities of ACO practices. The findings should help to guide PCORI’s future research agenda in this area while providing all involved with knowledge to advance patient-centered care.
Mayo: Victor Montori
Dartmouth: Glyn Elwyn
To determine if a proposed model for the implementation and “scale-up” of health care innovations (the AIDED model) is effective and useful. In implementation science, “scale-up” refers to the ability of beneficial interventions implemented in one place to spread and be replicated in many other places.
Annemijn Aarts and Glyn Ewlyn
To collect a wide range and large sample of doctors’ views on shared decision making: Why are doctors involved in shared decision making? What motivates them? Why and how are they trying harder than the rest? Are there cultural differences around the globe?
To learn about healthcare experiences among people with limited financial resources. We are interested in their perspectives on using a audio-recording device or smartphone to empower people when they interact with healthcare providers.
Dartmouth: Lisa Adams, Al Mulley
Witswatersrand: Debashis Basu, Tanusha Singh
To explore and characterize the salient lived experiences of miners, ex-miners and their families as well as the perceptions of other key stakeholders in the mining sector to advance more person-centered solutions to TB treatment.