The National Library of Medicine has awarded $1.4 million in funding to Professor Paul J. Barr and Dr. Saeed Hassanpour, in collaboration with IC3D and Dartmouth-Hitchcock Manchester for the Open Recordings project over four years.
Between 40 – 80% of clinic visit information is forgotten immediately by patients, a significant impediment to self-management for older adults with multimorbidity that leads to poor health outcomes. The proposed research will integrate audio-recordings of clinic visits into a Personal Health Library (PHL), using data-science methods to link medical terms from the recording to trustworthy patient resources, which can be retrieved, organized, edited and shared by patients. It is expected that the Audio-PHL will be easy to use and highly utilized, making patients and caregivers more knowledgeable and confident of their health care needs and resulting in greater self-management capabilities.
Dr. Glyn Elwyn, a researcher at the Dartmouth Institute for Health Policy and Clinical Practice and lead author of a recent JAMA editorial on patient recordings talks about the benefits of recording a visit with your doctor as well as some cautions to be aware of. Patients listen to the recordings whenever they need to recall what they discussed with the doctor, and they can give family members access to the recordings as well. It’s not a crazy idea, especially for older patients who may have hearing loss or struggle more than younger patients to recall information from doctors' visits.Learn More →
Preference Laboratory Researchers attended the 9th International Shared Decision Making conference at UNESCO World Heritage Center Lyon, France between July 2 and 5, 2017. The theme this year was Time to reflect on shared decision making: where are we now and where we want to be. This was a great event in the shared decision-making community working to improve care to patients and their families. This is an ideal event at which to make new professional acquaintances and to exchange ideas.Learn More →
If you are doctor, there is a good chance that at least one of your last 10 patients recorded their visit—either with or without permission. In a new JAMA article, Dartmouth Institute investigators on the Open Recordings Project look at the impact of this “new reality” on clinicians and patients and explain the often-confusing laws around recording clinical visits.Learn More →
By Tim Lahey and Glyn ElwynLearn More →
Dartmouth Institute Assistant Professor Rachel Thompson heads the Institute’s Right For Me research study, which aims to improve conversations about birth control and support people to make decisions that are right for them.Learn More →
In 2014 Kyla Donnelly Pearce, a master's degree student at The Dartmouth Institute for Health Policy and Clinical Practice and a Research Assistant at the Preference Laboratory, embarked on a study of how practicing gentle yoga regularly might help patients with brain injuries cope. In a study of the program, which the British medical journal Brain Injury published in December, Pearce and her team concluded that "yoga interventions have the potential to benefit multiple aspects of ABI survivors' quality of life and contribute to rehabilitation goals, including a positive sense of self, psychological well-being, and community integration."
Donnelly, K. Z., Linnea, K., Grant, D. A., & Lichtenstein, J. (2016). The feasibility and impact of a yoga pilot programme on the quality-of-life of adults with acquired brain injury. Brain Injury, 1–7. http://doi.org/10.1080/02699052.2016.1225988Learn More →
New Policies for Shared Decision Making. And Informed Consent?
New policies to incentivize shared decision making have the potential to change care for patients with common, preference sensitive conditions. Yet, there are challenges for implementation, including lack of clinician buy-in and measurement limitations, with the risk that shared decision making could become a checkbox item. This talk will review new policies for shared decision making, discuss the challenges to successful implementation, and consider broader health system changes in informed consent and patient engagement that may help pave the way for true shared decision making.
Erica Spatz, MD, MHS
Assistant Professor, Cardiologist
Clinical Investigator at the Center for Outcomes Research
and Evaluation (CORE) at Yale School of Medicine.
e3 is shorthand for an email listserv dedicated to patient engagement - an area of research and development that is among the core areas of interest for The Dartmouth Institute for Health Policy & Clinical Practice.
Please email us if you want to join the e3 listserv.
Members will use this listserv to share news, papers, research opportunities relevant to e3.
Membership is open to anyone who wants to be part of this community of practice.
By Glyn Elwyn, Marie-Anne Durand, and Peter Scalia.
Commissioned by the National Quality Forum, Washington, D.C.Learn More →
The redesigned optiongrid.org offers several new features, including account-free access to the decision aid library and expanded interactive versions.Learn More →
What if shared decision making happened all the time?
Perhaps we have been drinking too much Kool-Aid, but we let ourselves imagine a future where patients and clinicians collaborated effectively about health decisions and used the best possible evidence to think carefully about the harms as well as the benefits of interventions. We argued that collaborative deliberation would lead, in the first place, to better-informed patients who would make preference-based decisions. This would lead to safer, cost-effective, patient-aligned healthcare. This, in turn, would lead to improvements in utilization rates, better resource use, and improved health outcomes. (See the figure below.) These are of course hypotheses - now we need to find ways to test them.--Glyn Elwyn
As currently designed, guidelines may well stand in the way of you getting the care that is right for you. By Glyn ElwynLearn More →